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Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Introduced
—
Last Action
Mar 10, 2026
Session
NY 2025-2026
Sponsors
1 primary · 14 co
PASSED ASSEMBLY
ORDERED TO THIRD READING CAL.47
SUBSTITUTED FOR A1296B
RETURNED TO SENATE
REFERRED TO WAYS AND MEANS
DELIVERED TO ASSEMBLY
PASSED SENATE
ADVANCED TO THIRD READING
2ND REPORT CAL.
1ST REPORT CAL.283
PRINT NUMBER 1287B
AMEND AND RECOMMIT TO HEALTH
REFERRED TO HEALTH
DIED IN ASSEMBLY
RETURNED TO SENATE
ORDERED TO THIRD READING RULES CAL.291
SUBSTITUTED FOR A1296A
REFERRED TO WAYS AND MEANS
DELIVERED TO ASSEMBLY
PASSED SENATE
ADVANCED TO THIRD READING
2ND REPORT CAL.
1ST REPORT CAL.487
AMEND AND RECOMMIT TO HEALTH
PRINT NUMBER 1287A
REFERRED TO HEALTH
Get a plain-English explanation of what this bill does, who it affects, and why it matters.
RETURNED TO SENATE
Roxanne J. Persaud
Joseph P. Addabbo Jr.
Jake Ashby
Cordell Cleare
Leroy Comrie
Jeremy Cooney
Nathalia Fernandez
Patrick M. Gallivan
Pamela Helming
Brad Hoylman-Sigal
Jack M. Martins
Rachel May
Dean Murray
Gustavo Rivera
Lea Webb