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Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Introduced
—
Last Action
Mar 10, 2026
Session
NY 2025-2026
Sponsors
1 primary · 27 co
SUBSTITUTED BY S1287B
AMENDED ON THIRD READING 1296B
ORDERED TO THIRD READING CAL.47
RULES REPORT CAL.291
REPORTED
ORDERED TO THIRD READING RULES CAL.291
SUBSTITUTED BY S1287A
REPORTED REFERRED TO RULES
REPORTED REFERRED TO WAYS AND MEANS
PRINT NUMBER 1296A
AMEND AND RECOMMIT TO HEALTH
REFERRED TO HEALTH
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SUBSTITUTED BY S1287B
Amy Paulin
Nader Sayegh
Nikki Lucas
Joe DeStefano
John T. McDonald III
Steven Otis
David Weprin
Samuel Pirozzolo
Daniel Norber
Michael Novakhov
Lester Chang
George Alvarez
Jeffrey Dinowitz
Erik Dilan
Linda Rosenthal
Aron Wieder
Brian Manktelow
Angelo J. Morinello
Joe Angelino
Rebecca Kassay
William Colton
John Lemondes
Judy Griffin
Joseph Sempolinski
Albert A. Stirpe
Michael Durso
John K. Mikulin
MaryJane Shimsky