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Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.
Introduced
Feb 18, 2025
Last Action
Mar 3, 2026
Session
IL 104th
Sponsors
1 primary · 12 co
Added Chief Co-Sponsor Rep. Ann M. Williams
Added Chief Co-Sponsor Rep. Maurice A. West, II
Remove Chief Co-Sponsor Rep. Maurice A. West, II
Remove Chief Co-Sponsor Rep. Ann M. Williams
Added Co-Sponsor Rep. Will Guzzardi
Added Co-Sponsor Rep. Maura Hirschauer
Added Co-Sponsor Rep. Kam Buckner
Added Co-Sponsor Rep. Tracy Katz Muhl
Added Co-Sponsor Rep. Margaret Croke
Added Co-Sponsor Rep. Janet Yang Rohr
Added Co-Sponsor Rep. Theresa Mah
Placed on Calendar 2nd Reading - Short Debate
Approved for Consideration Rules Committee; 003-002-000
Chief Sponsor Changed to Rep. Mary Beth Canty
Rule 19(a) / Re-referred to Rules Committee
Added Co-Sponsor Rep. Camille Y. Lilly
Added Co-Sponsor Rep. Barbara Hernandez
Held on Calendar Order of Second Reading - Short Debate
Second Reading - Short Debate
Added Co-Sponsor Rep. Kelly M. Cassidy
Do Pass / Short Debate Judiciary - Civil Committee; 013-007-000
Added Co-Sponsor Rep. Anne Stava
Placed on Calendar 2nd Reading - Short Debate
Assigned to Judiciary - Civil Committee
First Reading
Referred to Rules Committee
Filed with the Clerk by Rep. Ann M. Williams
Get a plain-English explanation of what this bill does, who it affects, and why it matters.
Remove Chief Co-Sponsor Rep. Maurice A. West, II
Kelly M. Cassidy
Camille Y. Lilly
Ann M. Williams